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Mesothelioma Resources

Receiving a mesothelioma diagnosis can leave you feeling overwhelmed, shocked, and afraid. Thankfully, various mesothelioma resources can provide you and your family with medical, financial, and emotional support.

Fact-Checked and Updated by: Jenna Tozzi, RN

Last updated:

Benefits of Mesothelioma Support

Support for mesothelioma ranges from financial to emotional. However, no matter the form it takes, mesothelioma support can offer many benefits for you and your family.

  • Improved Survival Rates

    Some research shows support groups improve the attitude of patients, which may contribute to the length of survival.

  • Better Quality of Life

    Meeting with others who are facing the same issues can make you feel less alone. You are also getting out and socializing with others and forming relationships with people in the same situation.

  • Connections With Other Victims

    Talking to someone who understands how your symptoms are impacting your daily life or how the stress of the disease is weighing on your mind is comforting. Together, you can share ways to cope.

  • Reduced Stress, Depression, and Anxiety

    Holding all your concerns inside can create a great deal of stress. By seeking mesothelioma support, you are releasing your concerns to others who understand exactly what you are going through.

  • Strengthened Sense of Community

    Mesothelioma can be isolating. As you share your experiences about living with malignant mesothelioma, you may feel less alone and more able to fight this disease.

Emotional support can be just as important as medical and financial support, if not more.

See how 7 mesothelioma patients became survivors with the help of treatment and the support of loved ones in your Free Mesothelioma Survivors Guide. 

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Mesothelioma Support Groups

Mesothelioma support groups offer a dimension of care aimed at improving your sense of well-being. These groups are a safe place to share your feelings — both good and bad — with people who truly understand and care about your journey.

An older man attends a mesotheliomasupport group

Because of the severity of this cancer, you may benefit from connecting with others dealing with similar thoughts, feelings, and emotions.

Support groups offer a shared connection and experience with other mesothelioma survivors who have the same illness, which can help you feel less alone and more connected.

Local Support Groups

Local support groups provide face-to-face contact and are an excellent way to meet others to bond with and share support in a more intimate manner than over the phone or online.

You can find local cancer or mesothelioma support groups through:

  • National Cancer Information Center (NCIC): NCIC can help lead you to a support group in your area by calling 1-800-227-2345.
  • Hospitals: Most hospitals offer cancer support groups for their patients. Ask a member of your care team for more information or ask a hospital social worker.
  • Mesothelioma cancer centers: Many mesothelioma treatment centers host support groups for people who want to participate.

Because mesothelioma is so rare, there may not be a local support group near you dedicated solely to this disease’s victims. However, there are many groups for people suffering from cancer in general.

Learn about the support systems that helped 7 mesothelioma patients become survivors — get your Free Mesothelioma Survivors Guide.

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Online Support Groups

Local and phone mesothelioma support groups are only available at certain times, but there is no schedule for your struggles with mesothelioma. This is where mesothelioma online support groups may be most helpful.

You can find mesothelioma support groups online through:

  • Mesothelioma Caregiver Conversations: The Meso Foundation welcomes caregivers to a Facebook page designed just for them.
  • Mesothelioma Loss Support: The Meso Foundation also has a Facebook page for those who have experienced loss due to mesothelioma.
  • Mesothelioma Warriors Survivors: This private Facebook group mediated by the Meso Foundation is open and always available for its members. Join others in conversation whenever you need to talk, be encouraged, or just get any feelings of frustration or sadness off your chest.

To register and join any of the Meso Foundation’s Facebook groups, contact [email protected].

While these online communities may not be as intimate as in-person support groups, they can provide invaluable support when other options are unavailable.

Phone Support Groups

Phone support groups may be a good option if you are looking for support from and connection with others diagnosed with mesothelioma.

You can find mesothelioma phone support groups through:

  • The Meso Foundation: Once a month, join a conference call from your own home to listen and talk about shared experiences, struggles, and victories.
  • The Meso Foundation’s Caregiver Support Group: If you’re a caregiver, dial in with other caregivers and receive the affirmation and validation you may need as you care for your loved one.
  • NCIC: The NCIC is a contact point that can match you with the right kind of support network.

Get matched with a top mesothelioma specialist who can help you access treatments and find support groups.

Types of Mesothelioma Resources

Available mesothelioma resources include emotional support, medical assistance (like help finding the right doctors), and financial assistance for treatment and other expenses.

Financial Mesothelioma Support

A mesothelioma diagnosis impacts more than your emotions — it upsets your entire life.

Suddenly, you and your family are thrust into a world of doctor’s appointments, tests, and mesothelioma treatment, potentially resulting in hundreds of thousands of dollars in unexpected costs. Financial support for mesothelioma can help ease some of the burden weighing on you and your loved ones.

If you are concerned about treatment costs, we can help you access financial support for mesothelioma. Call our team right now at (866) 608-8933 to get started.

A few avenues to help you access financial support for mesothelioma are listed below.

American Cancer Society (ACS)

At cancer.org, you can discover your eligibility for the financial support that ACS offers, such as free or subsidized medical equipment programs, insurance explanations, and budgeting guidance.

Mesothelioma Applied Research Foundation (Meso Foundation)

You can speak to a mesothelioma expert on staff at the Meso Foundation who can provide mesothelioma support on a range of financial issues.

Mesothelioma Research Foundation of America (MesoRFA)

MesoRFA provides a list of resources for financial assistance for mesothelioma cancer patients.

National Cancer Information Center (NCIC)

You can call the NCIC’s 24/7 helpline at 1-800-227-2345 to receive information about programs in your area to help with expenses not covered by insurance.

If you have been diagnosed with mesothelioma, we can connect you with top specialists. Get started by using our Free Doctor Match.

Mesothelioma Support for Travel

Mesothelioma is a rare and hard-to-treat cancer, so for the best results, you should seek treatment from an experienced mesothelioma doctor. However, it can be overwhelming to find such doctors and even more difficult to choose one.

Getting treated by a specialist also means that you may have to travel to a top mesothelioma cancer center where mesothelioma doctors work and can provide you with the best support for your condition.

Traveling to and from cancer centers or paying for hotels or other accommodations for the length of your treatment can be very expensive. Luckily, some organizations offer travel support to mesothelioma victims and their families.

Transportation support for mesothelioma is available from the following:

  • ACS: The ACS provides transportation to and from treatment and lodging and temporary housing arrangements through discounted hotel rooms and Hope Lodges throughout the country.
  • Air Charity Network: This charitable organization provides air transportation to people needing treatment at specialized facilities.
  • Angel Wheels To Healing: Angel Wheels provides non-emergency long-distance ground transportation to financially disadvantaged patients.
  • Meso Foundation: The Meso Foundation offers grants for those traveling to see mesothelioma experts out of their area or for those enrolled in clinical trials.
  • Mesothelioma cancer centers: Most cancer centers offer their own lodging accommodations or partner with local hotels to offer discounted rooms for patients receiving cancer treatment.

An inability to travel should never stop you from getting the treatment you need. These programs exist to make sure travel doesn’t become too much of a burden for you or your family.

Emotional Mesothelioma Support

Fighting mesothelioma takes a huge emotional toll, often requiring more emotional support than your family and friends can give. In addition, the symptoms of mesothelioma can cause great pain and discomfort, negatively impacting your quality of life.

Thankfully, many programs and groups offer mesothelioma support services for mental health and emotional needs.

Emotional support for mesothelioma includes:

  • Cancer support groups
  • Family and friends
  • Mesothelioma support groups
  • Palliative and end-of-life care options

Mesothelioma is a rare and particularly aggressive cancer. While you may share many experiences with other cancer victims, your experience may also differ in many ways.

Mesothelioma-specific support groups and awareness efforts are good places to find the specific support you may need.

Community Support

While receiving emotional support from individuals who understand what you’re going through is essential, mesothelioma support from the wider community can also help. These larger efforts raise awareness, fund treatment efforts, and help mesothelioma victims feel seen.

Community support for mesothelioma includes:

  • Fundraisers, such as races or concerts
  • Local hospital cancer awareness events
  • Mesothelioma awareness efforts

There are a few specific events with special relevance to mesothelioma victims and their loved ones.

National Mesothelioma Awareness Day

Since 2004, September 26th has been the annual commemoration of a disease that kills nearly 3,000 people each year in the U.S. The Meso Foundation steps up its awareness and fundraising efforts on this fall day, flooding social media and promoting third-party fundraising events nationwide.

Mesothelioma affects thousands every day, but supporters of its victims designate one day a year to honor these brave people and raise awareness for a disease few people know about.

National Asbestos Awareness Week

April 1st through the 7th is devoted to asbestos awareness and its dangers. In 2013, the U.S. Senate designated the first week in April as Asbestos Awareness Week in order to draw attention to the disastrous effects of asbestos exposure on the lives of Americans throughout the decades.

International Symposium on Malignant Pleural Mesothelioma

The International Symposium on Malignant Pleural Mesothelioma is a two-day conference created by the Meso Foundation for mesothelioma patients, their loved ones, and those who have lost someone to mesothelioma.

During the conference, you can learn about the latest treatment options, speak directly with top mesothelioma experts, and connect with others dealing with the devastating effects of mesothelioma.

Only those who have been diagnosed with mesothelioma truly understand what it’s like to be diagnosed and live with this disease. Read 7 patients’ stories of hope and bravery told in their own words in your Free Mesothelioma Survivors Guide.

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  • Survivors who beat the odds
  • Tips for fighting mesothelioma
  • Navigating life after treatment

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Private Mesothelioma Support

Sometimes you may want to connect with someone with specialized training supporting people with cancer. You may just want a one-on-one connection with someone who understands what you are going through. This is where private cancer and mesothelioma support programs come in.

You may find private mesothelioma support through the following:

  • The Cancer Support Community

    Every day, the Cancer Support Community offers a 12-hour live chat from 9 a.m. – 9 p.m. with experienced counselors and resource specialists. They not only offer emotional support, but also provide information on local, regional, and national resources.

  • Cancer Hope Network

    The Cancer Hope Network can match you with a volunteer cancer survivor who shares your diagnosis. Contact usually takes place over the phone, but in-person and online support may be possible if requested.

Connecting with a single person may help you access the specific type of support you need, whether that means information on specific mesothelioma resources or a closer connection with someone who is struggling with the same issues you are.

Mesothelioma Family and Caregiver Support

Mesothelioma support groups are also available for spouses, family members, and others dealing with the diagnosis of a loved one.

A mesothelioma patient hugs a family member

These groups may provide support for coping with a mesothelioma diagnosis or grieving the loss of someone who died from mesothelioma. They may also focus on mesothelioma caregiver resources.

Family members should not suffer alone with the hardships of seeing someone they love battle mesothelioma. In addition, caregivers to mesothelioma patients play an essential but incredibly difficult role, and getting the proper support is necessary for their and their loved one’s well-being.

Below, find examples of ways to access mesothelioma support for families and caregivers. To register and join these groups, contact [email protected].

Mesothelioma Loss Support

The Meso Foundation has a private Facebook page for families and others who have lost someone to mesothelioma.

Mesothelioma Caregiver Conversations

The Meso Foundation hosts a Facebook page to help connect caregivers for advice, mesothelioma resources, and emotional support.

Learn how 7 mesothelioma patients got the support they needed to beat this cancer in your Free Mesothelioma Survivors Guide.

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  • Survivors who beat the odds
  • Tips for fighting mesothelioma
  • Navigating life after treatment

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Get Help Accessing Mesothelioma Resources

You may feel anger toward the companies that allowed you to be exposed to a toxic substance, robbing you of your health and precious time with your loved ones. You may feel isolated — as if no one really understands or can cope with what you are going through.

A mesothelioma support group may offer kindness, knowledge, support, and a shared understanding that not even friends and family can provide.

Many other mesothelioma resources are also available, including medical treatment and financial assistance to help pay for it.

See how 7 mesothelioma patients obtained compensation that helped them access top treatments and become survivors — get your Free Mesothelioma Survivors Guide now.

Mesothelioma Resources FAQs

How does cancer affect your mental health?

Upon receiving a cancer diagnosis, it’s common to have feelings of anxiety and depression about the uncertain journey ahead.

Mesothelioma patients and caregivers are encouraged to lean on their support systems following their diagnosis and during their treatment plan. Mesothelioma support — whether in the form of a support group, financial assistance, or simply asking for help with daily tasks — can be extremely beneficial for patients’ well-being.

It’s also important to note that receiving treatment for mental health conditions is still possible even while battling cancer. Talk to your doctor about what next steps you can take if you begin experiencing symptoms of anxiety and/or depression after your mesothelioma diagnosis.

How can I find mesothelioma support groups online?

Online support groups have become more useful than ever in the aftermath of the COVID-19 pandemic. To find mesothelioma support groups online, turn to trusted organizations like the Meso Foundation and the American Cancer Society.

These organizations offer numerous online support resources — and if they don’t have what you’re looking for, they can help point you in the right direction.

Even though you may not be able to meet with other mesothelioma patients in-person, you can still make meaningful connections online.

What financial help is available for cancer patients?

If you or a loved one was diagnosed with malignant mesothelioma cancer, you may be eligible for various forms of financial assistance. Numerous charities and grants exist to help you afford treatments and other expenses.

Additionally, you may qualify for legal compensation through a mesothelioma lawsuit or asbestos trust fund claim. Filing a lawsuit may sound overwhelming; however, financial compensation can prove invaluable when it comes to affording your costs of care.

An experienced mesothelioma lawyer can handle all the heavy lifting while you focus on your health and spending time with loved ones.

Jenna TozziWritten by:

Director of Patient Advocacy

Jenna Tozzi, RN, is the Director of Patient Advocacy at Mesothelioma Hope. With more than 15 years of experience as an adult and pediatric oncology nurse navigator, Jenna provides exceptional guidance and support to mesothelioma patients and their loved ones. Jenna has been featured in Oncology Nursing News and is a member of the Academy of Oncology Nurse & Patient Navigators & the American Nurses Association.

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References
  1. American Cancer Society. (n.d.). “Support and online communities.” Retrieved May 10, 2023, from: https://www.cancer.org/support-programs-and-services/online-communities.html
  2. CancerCare. (n.d.) “Transportation Resources.” Retrieved May 10, 2023, from: https://www.cancercare.org/publications/303-transportation_resources
  3. Cancer Hope Network. (n.d.) “you Are Not Alone.” Retrieved May 10, 2023, from: https://cancerhopenetwork.org/patient-and-caregiver-support/
  4. Cancer Support Community. (n.d.). Cancer Support Helpline. Retrieved May 10, 2023, from: https://www.cancersupportcommunity.org/cancer-support-helpline
  5. Darlison, L., Taylor, B., Harrison, M., Gardiner, C., & Ejegi-Memeh, S. (2021). Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review. Retrieved May 10, 2023, from https://journals.sagepub.com/doi/pdf/10.1177/02692163211007379
  6. Goleman, D. (1993, Sept. 15). “Support Groups and Cancer Survival.” Retrieved May 10, 2023, from: https://www.nytimes.com/1993/09/15/news/support-groups-and-cancer-survival.html
  7. Mesothelioma Applied Research Foundation. (n.d.). “Patient support and resources.” Retrieved May 10, 2023, from: https://www.curemeso.org/mesothelioma-treatment-plan/patient-support-and-resources/
  8. National Cancer Institute. (n.d.). “Cancer Support Groups.” Retrieved May 10, 2023, from: https://www.cancer.gov/about-cancer/coping/adjusting-to-cancer/support-groups#:~:text=
How We Can Help

Mesothelioma Hope is passionate about helping patients and families affected by this aggressive cancer. A mesothelioma diagnosis can be scary and isolating, but we’re here for you at every step. Hope is only a phone call away.

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