Mesothelioma Cancer Foundations

Mesothelioma cancer foundations and charities raise awareness of this disease and advocate for patients and their families. They also provide valuable resources and support that can make it easier to navigate life with mesothelioma. Learn more about these organizations and get our help accessing personalized medical guidance, financial assistance, and supportive care.

Fact-Checked and Updated by: Jenna Tozzi, RN

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How Mesothelioma Foundations Can Help

Mesothelioma foundations help patients and family members manage life with this asbestos-related cancer.

Mesothelioma cancer foundations support the community by:

  • Funding research to develop better treatments, improve early detection methods, and ultimately find a cure for mesothelioma
  • Offering emotional support services, including counseling, support groups, and peer mentors
  • Providing financial assistance for medical bills, out-of-pocket expenses, and supportive care

These foundations also push lawmakers to enact rules and regulations to prevent asbestos exposure, which is the only known cause of mesothelioma.

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Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) is a nonprofit advocacy group that aims to alert the public about the dangers of asbestos exposure, advocate for a global asbestos ban, and support people affected by asbestos-related diseases.

The ADAO has been urging Congress to pass the Alan Reinstein Ban Asbestos Now (ARBAN) Act, which would completely ban the import and use of all six types of asbestos in the United States.

“Our goal is a world without asbestos and without asbestos-related diseases.”

Linda Reinstein, ADAO President & Co-Founder

The ADAO also hosts the annual Asbestos Awareness and Prevention Conference, which brings together top mesothelioma doctors, subject matter experts, and community members to share the latest advancements in prevention and treatment.

American Cancer Society

The American Cancer Society (ACS) is a nationwide health organization and one of the most trusted sources of information on mesothelioma, lung cancer, and other asbestos-related diseases.

Its Road to Recovery service offers transportation assistance to families who need help getting to and from the hospital. The ACS also provides free lodging for eligible patients and caregivers through its 31 Hope Lodge locations across the country.

The ACS is well known for hosting events like Relay for Life to raise money for research grants and community services.

Jenna Tozzi, RN, Chief Patient Care Advisor

If you or a loved one has been diagnosed with mesothelioma, you don’t have to face this alone. Contact us for free to get resources and support tailored to your needs.

International Mesothelioma Program

Founded in 2002, International Mesothelioma Program (IMP) is located at Brigham and Women’s Hospital in Boston.

The IMP is the largest mesothelioma program in the world, with more than 80 caregivers, researchers, and support staff dedicated to helping patients improve their prognosis and quality of life.

It’s also home to some of the most respected mesothelioma specialists in the country, such as Dr. Raphael Bueno and Dr. Daniel Wiener.

“We ‘go for broke’ in diagnosing and treating the patients who come to us for their care. Our comprehensive diagnostic and treatment strategies give patients everything we’ve got.”
International Mesothelioma Program

The IMP has helped set new standards for treating this disease through medical collaboration, clinical research, and pioneering ventures like its mesothelioma genome project.

Mesothelioma Applied Research Foundation

The Mesothelioma Applied Research Foundation (Meso Foundation) is a nonprofit organization dedicated to eradicating this cancer through education, support, and advocacy.

As a leading mesothelioma research foundation, it has contributed over $11.8 million to doctors and scientists searching for a cure.

The Meso Foundation also hosts support groups, advocates for increased awareness about mesothelioma, and works to ensure that patients have access to the best treatment options.

Miles for Meso

Miles for Meso is a national 5K race, fun run, and walk for mesothelioma awareness and research sponsored by Simmons Hanly Conroy, our partner law firm.

Every September, teams of mesothelioma survivors and loved ones participate together with a shared experience and purpose, sometimes in remembrance of those who’ve lost their lives to this rare cancer.

“Miles for Meso means that somebody has my back…and somebody is amplifying my voice against the use of asbestos and the industry of corporate greed.”

Julie Gundlach, 19+ year mesothelioma survivor and Miles for Meso participant

The event has raised nearly $1 million for mesothelioma charities and advocacy organizations since it began in 2009.

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National Cancer Institute

The National Cancer Institute (NCI) plays a crucial role in addressing mesothelioma through research and education.

In addition to awarding grants to cancer researchers, it sponsors and supports mesothelioma clinical trials that test new and emerging treatments.

The NCI also publishes training documents that doctors and other health care professionals use to stay up-to-date on the best practices in mesothelioma treatment.

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) helps patients and caregivers facing less common diseases like mesothelioma feel seen, heard, supported, and connected.

It has patient assistance programs for:

  • Caregiver respite
  • Diagnostic testing
  • Emergency support
  • Medications
  • Travel to clinical trials and consultations

NORD also offers seed grants to researchers working on new tests and treatments for rare diseases.

Simmons Cancer Institute

Simmons Cancer Institute (SCI) is a comprehensive cancer center located at Southern Illinois University School of Medicine in Springfield, Illinois. Established in 2005, the institute is dedicated to cancer research, patient care, education, and community outreach.

SCI is named after our legal partners at Simmons Hanly Conroy in recognition of the $10.2 million pledge made by the firm to help fight mesothelioma and other cancers.

Simmons Cancer Institute provides cutting-edge cancer care to patients in the region and conducts research to advance treatment methods.

How Mesothelioma Hope Gives Back

At Mesothelioma Hope, we believe in contributing to the fight against this cancer and other asbestos-related diseases through charitable giving, partnerships with other mesothelioma cancer foundations, and efforts to raise awareness.

We also believe in giving back where it matters most — to the patients and caregivers navigating mesothelioma every day.

We do this by: 

  • Helping patients get a second opinion on their diagnosis
  • Providing access to top specialists with our Free Doctor Match
  • Recommending peer mentors for families and caregivers
  • Sharing resources on financial assistance and legal help

Get support now or call (866) 608-8933 to connect with our team.

Mesothelioma Foundation FAQs

Is there a charity for mesothelioma?

Yes, many mesothelioma charities fund cancer research and help patients find specialized medical care and support services.

Some of these include the:

  • American Cancer Society
  • Asbestos Disease Awareness Organization
  • International Mesothelioma Program
  • Mesothelioma Applied Research Foundation
  • National Cancer Institute
  • National Organization of Rare Disorders

These mesothelioma cancer foundations are dedicated to improving the lives of patients and the people who care for them.

How do mesothelioma foundations help patients and families?

Mesothelioma organizations help support patients and their families in a variety of ways, including:

  • Advocating for patient rights and raising awareness about mesothelioma
  • Connecting patients and families with mesothelioma support groups
  • Helping patients find doctors and hospitals specializing in mesothelioma
  • Funding research to develop more effective mesothelioma treatments
  • Providing financial assistance for medical expenses and other related costs

How can I find top mesothelioma cancer foundations?

You can find trusted mesothelioma cancer foundations by contacting our Patient Advocates. We’re here to listen to your story and recommend a mesothelioma charity that can help.

Jenna TozziWritten by:

Chief Patient Care Advisor

Jenna Tozzi, RN, is the Chief Patient Care Advisor for Mesothelioma Hope. With more than 15 years of experience as an adult and pediatric oncology nurse navigator, Jenna provides exceptional guidance and support to cancer patients and their loved ones. Jenna has been featured in Oncology Nursing News and is a member of the Academy of Oncology Nurse & Patient Navigators & the American Nurses Association.

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References
  1. American Cancer Society. (n.d.). Home page. Retrieved March 12, 2025, from https://www.cancer.org/
  2. Asbestos Disease Awareness Organization. (n.d.). Home page. Retrieved March 12, 2025, from https://www.asbestosdiseaseawareness.org/
  3. International Mesothelioma Program. (n.d.). “Treating Mesothelioma.” Retrieved March 12, 2025, from https://impmeso.org/treating-mesothelioma/
  4. Mesothelioma Applied Research Foundation. (n.d.) Home page. Retrieved March 12, 2025, from https://www.curemeso.org/
  5. Mesothelioma Applied Research Foundation. (2024, August 6). Meso Foundation awards $300,000 to mesothelioma research projects. Retrieved March 12, 2025, from https://www.curemeso.org/2024/08/06/news-meso-foundation-awards-300000-to-mesothelioma-research-projects/
  6. Miles for Mesothelioma. (n.d.). Home page. Retrieved March 12, 2025, from https://www.milesformesothelioma.org/
  7. National Cancer Institute. (n.d.). Home page. Retrieved March 12, 2025, from https://www.cancer.gov/
  8. National Organization for Rare Disorders. (n.d.). Mesothelioma. Retrieved March 12, 2025, from https://rarediseases.org/rare-diseases/mesothelioma/
  9. Simmons Cancer Institute. (n.d.). Home page. Retrieved March 12, 2025, from https://www.siumed.edu/cancer
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